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DCIS Negative ER/PR - What tests can be done to monitor reoccurence?

Breast Cancer | Last Active: Feb 10, 2024 | Replies (12)
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@windyshores

I had invasive grade 2 with lymphovascular invasion, and double mastectomy. Because mine was ER+ I did 5 years of meds and saw doc twice a year. After 5 years, no appointments even though risk for ER+ rises. I read that with ER- if you make it 5 years without recurrence, you are very low risk (different from ER+).

Some docs do cancer markers and other blood tests. I am 9 years out and considering asking for a second opinion for my 10 year anniversary! Good luck!

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Replies to "I had invasive grade 2 with lymphovascular invasion, and double mastectomy. Because mine was ER+ I..."
gillbell84 | @gillbell84 | Feb 7, 2024

Thanks for that - everyone's journey can be so different. Ive asked my specialist at cedars what else i can do besides just the physicals every 6 months. People say oh its great you only had DCIS but the worry dosent go away and I feel this is compounded with the fact mine was aggressive and hid so well for Im guessing many years - i suspect I had it for 3/4 years before it was found at least.

And yes I read also how the reoccurrence rates for hormone positive and negative differ and change over length of time - how strange this is. Its all so complex but I keep saying the risk is individualised so why cant we get tests that take this into account when it comes to monitoring.

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