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How do I get my Rheumatologist to listen ?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 16 8:43am | Replies (33)Comment receiving replies
In a self-deprecating way, I told my rheumatologist that I was a "prednisone junkie."
I remember when I was on the verge of being blind in one eye while on 100 mg of prednisone. I told my ophthalmologist that I "didn't care" if I ended up being blind because I felt great!
There was another time when I asked my rheumatologist why prednisone wasn't a "controlled substance." She said that was why I shouldn't "self medicate" with prednisone and to "use prednisone as directed."
This all happened a long time ago before things deteriorated to the extent that I had to get off prednisone.
I still hear prednisone "calling me"once in a while especially when I can't explain why I still have pain. When someone asks me how much pain I have, I say about "3" on average for the "normal" pain. Then I say "0" for the "abnormal type of pain."
Replies to "In a self-deprecating way, I told my rheumatologist that I was a "prednisone junkie." I remember..."
Do we have a thread anywhere about that pain scale? How do I even answer that question? I was raised to tough it out so to say anything is above a 3 feels like I'm being a whiner. I'd much rather have them ask me some very real questions about how much the pain is impacting my life.
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I am considering having a sinus lift and bone graft in service to dental Implants down the road when bone gets solid.
In the surgery they give decadron to control swelling. I asked if they ever use Prednisone and his answer was no because that suppresses the immune system.
He must have missed the day when they describe decadron as a steroid aka immunosuppressant. 🙄