Pain right side close to the belly button - transverse colon ptosis
Hi everyone,
I am here as most of you trying to find some answers 🙂
I am 32 yo and I've been having strange pain attacks for the last 15 years that have always been located in the same area - close to my belly button on the right side. Usually i had one episode per yer & always thought I had chronic appendicites. 2 years ago I woke up in the middle of the night from an excruciating pain attack and ended up in the ER only to find out I was healthy...Since that day the pain never left, I am in a daily pain in the very same area that feel like somebody is squeezing my intestines. Sometimes it gets bit better, sometimes it gets worse and sometimes I have the very painful attacks when I can't inhale because it hurts that bad. In the 2 year I've done 3 CT scans, 3 colonoscopies, gastroscopy, maybe 30 ultrasounds, 1 MRI, idk how many blood tests, 1 diagnostic laparoscopy during which they removed my appendix (saying it was chronically inflames). After the surgery I felt better for a while but the pain attacks slowly started to return and in 2 months I was back to standing on my knees and waiting for the pain to let go. Moreover, now I have a strange discomfort in the upper right side (I believe where liver is) but again, as per all tests I am compliteley healthy. The only abnormality doctors found is that I have a long transverse colon which has falled down to the under the belly button area and a cecum located deep in the pelvis, judging by the MRI pics that's exactly where I have my pain..And maybe the upper right pain comes from the Payr's syndrom (not sure if I spelled it correctly). I am healthy gyenocologically, I don't have IBS or IBD. The area of pain is alweays painful so I feel it when doctors press there. I used to think that maybe I had ACNES but I think the pain is connected with bowel movements.
I had also recently discovered that I had Yersenias, not sure when though, but the doc said that I had elevated markers that indicated that I no longer have it? I never have diarrhea, nor do I have a constipation, I do have a tendency to get constipated, but it might happen 1/2 months for 3 days and strangely enough those 3 days are the days of pain relief. I do also have orange mucus in my stool (apologies for the detail..)I honestly would be ok if I had my pain episodes 1/year as before because being in a debilitating pain daily literally sucks life out of a person, I can't even walk fast, sitting in the same position for too long isn't possible, standing too long isn't possible..
My main questions is probably does anyone here has a transverse colon ptosis that causes daily pain? Would a colon resection to make it shorter and hence naturally lifted to where its supposed to sit be helpful? Or is it possible that my Yersenia infection is still there?
I am sorry for the long read...it's been very hard these 2 years with all the pain, doctors that have 0 interest and unability to lead a regular life.
Anyhow, thank you in advance for everyone who would respond 🙂
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Please get evaluated for nephroptosis! I have Ehlers Danlos with the same pain you describe. My right kidney had become detached and was floating in my pelvis. It became anterior and flipped, kinking the ureter and causing hydronephrosis. They diagnosed it with a lying and standing IV pyelogram. I just had surgery to pin it up along with my colon that was falling like your’s. Good luck!