← Return to CRPS - anyone suffering with complex regional pain syndrome

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@barbbielor

I have had CRPS for 16 years. I have had two spinal cord stimulators implanted - one in 2012 and one in 2018. That helps both feet and lower legs. More recently pain management did a sympathetic nerve block that has helped. I can tell the difference as it only involved one side. I have also been on Low Dose Naltrexone which is very helpful as well.

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Replies to "I have had CRPS for 16 years. I have had two spinal cord stimulators implanted -..."

The first pain management specialist indicated that the would inject my lumbar area in order to block pain in my ankle/foot. But I turned down the idea since it made no sense to me. The pain (due to Complex Regional Pain Syndrome) was originating in the left ankle/foot, radiating UP the leg and into the thigh. But yet he insisted that the pain source was within the lumbar spine and that injecting that area would diminish/stop the pain which he said was actually radiating in the lumbar area...but he said it was radiating DOWN the leg and the nerves in the foot/ankle were responding with the awful pain that at times made me cry from the burning intensity.
I have a different pain management specialist now who is working with me and the fact that I also have serious disc issues. He respected that I did not want a lumbar injection and strongly recommended PT for the CRPS pain in the foot/ankle. I agreed, and continued with the therapist who had worked wonders with the pain incurred from torn meniscus and damage resulting from the same fall that inflicted damage/pain to the foot/ankle. The horrid burning, 24/7 PL 8 to 9 out of 10 that had plagued me for good part of going on 2 years has finally been calmed down to PL 5-6 (out of 10). Still 24/7 but the burning sensation has diminished to 5-6 also. No more shooting pain up the leg as before, just numbing sensation of the leg and lower part of thigh, which my neurologist says is due to nerve damage. So far, I'm good with this, just could not wrap my brain around having a needle into my lumbar area. Will continue with the PT for another 5 weeks, and I do the exercises religiously at home.

Can you tell me how you felt AFTER the sympathetic block to your spine? Any side effects?
Thank you in advance for considering replying to this post.🌺