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@gamaryanne

@marciak9
Have you done a CTDNA lately? While you may not have evidence of a solid tumor, there could be cells in your bloodstream. Negatives on this test aren’t always accurate but they are finding amazing correlation with positive tests.
Even though my CA19-9 is in normal range, I will not stop some form of therapy. Most doctors have told me that until you have experienced no reoccurrence for 5 years you aren’t really in the clear. But…
I was staged IV. You may have a different situation. For me, I am investigating “maintenance” possibilities which include gemcitibine infusions (without abraxane) and also Xeloda (Cisplatin)

Without at least 2 or 3 months of CA19-9s consistently in normal range I won’t assume NED. Here again, markers track my condition very well. For some they don’t so it does become more of a surveillance game with scans. Congratulations on being where you are and don’t give up the fight!!!

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Replies to "@marciak9 Have you done a CTDNA lately? While you may not have evidence of a solid..."

Hi
Thank you for your information. I haven’t heard of CTDNA. I’ll ask my oncologist on Thursday. Is that a blood test?

I saw my pulmonologist today. She saw the haziness in my lungs but can’t tell if it’s sarcoidosis or Mets. There are a couple of sours that I think look like lesions. She said she could do a bronchial scope to find out if it’s an infection. Hopefully I’ll get answers on Thursday.