← Return to Newly diagnosed with ovarian cancer (OC) ~ looking for support

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@kristinfloyd

@tbkomparda thank you for taking the time to reply to me. I am wondering about the support group you mentioned above. I am not finding it with that url. I would love to read some survivor stories for sure! I am doing my best to not google things. I am really doing my best to let my Provider guide me, and trusting in her. She used the words "Cureable" which I am not sure she should have, and in another call she said "I think we are on a great trajectory for you". So I am holding onto those things, but I also want to be realistic. I work with nurses (I am an IT professional) and one of them told me she worked with heart and lung transplant patients. She told me that the patients who remained positive with their outlook, had better outcomes. So I am also holding on to that.
Do let me know about the website. I found Cancercare.org support group, but I am thinking it might not be the correct one.
Do you mind telling me what stage you were when you were diagnosed? I love hearing you are 26 months out. Thank you again for your kindness.

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Replies to "@tbkomparda thank you for taking the time to reply to me. I am wondering about the..."

Hi Kristin,
Here it is if you type this in should take you directly to it -
Ovarian Cancer Support Group - Facebook
It's wonderful that you work in a healthcare setting and have access to the best resources.
I was diagnosed at stage 3B there's several different sub-types of OC mine is endometroid estrogen driven they suspect due to silent endometriosis that's one theory. I had my debulking hysterectomy first then followed by 6 chemo's some surgeons suggest like yours 3-4 chemo, surgery and 3 more chemo is standard they won't know stage, grade and subtype until the hysterectomy and the pathology comes back carbo/taxol is chemo used although scary they are so adept at all the pre-meds I pretty much sailed thru a bit fatigue
also genetic testing there are many survivors of OC please let me know if your still having trouble accessing the website or have any additional questions.