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Newly diagnosed with ovarian cancer (OC) ~ looking for support
Gynecologic Cancers | Last Active: Apr 3 9:34pm | Replies (27)Comment receiving replies
@naturegirl5 Thank you for asking. I also perceive it as moving fast, so thank you for saying that. Fast, yet I want Friday to hurry up and get here. Anything that brings me closer to getting this cancer out of me. My Gyn/Onc called me again last evening, she had spoken to the Hematologist who was treating me prior for my blood clots. They both agreed that I should go back on Eliquis since clots are more common for cancer patients. So today, i started that again. I do not have a problem with it, but worry that I might bleed again. (I have been free from bleeding for about a week) . I also told her I would like to know the chemo she is thinking, and she told me, it is what I expected. I also asked about a port. She told me not to let that be a barrier, that I am young enough to just have regular IV if needed, in order to begin quickly. (I am not sure I mentioned, I am 53). Most days I am ok. I am still working, and feel relatively "normal". My sleep is not optimal, but not horrible. So my work is a great distraction. I also have a couple of friends that are helpful, and they are coming by thursday to help me organize my craft room. I told them I want order in at least one area of my life. So, overall, I would say I am doing well day to day. I like the Optimism with a plan concept. I have also been trying to replace worry with prayer. Every time a worry or negative thought comes to mind, I turn to prayer. I will lean on all of you. Thank you so much.
Replies to "@naturegirl5 Thank you for asking. I also perceive it as moving fast, so thank you for..."
Hello, I’m 62 diagnosed ovarian cancer in July 2023. I asked some of the same questions at the beginning of my treatment and several advised me to go ahead and get the port because you will probably get it anyway before the end. My port has been great-no problems. Just finished treatment on Friday. I sent you a private message just in case you want to talk more. I will be happy to share my experience. I’m at Mayo Florida.
I am glad I found this support thread. I am also almost 53, may. Not sure where I am at yet. Went to the ER last Friday, a week ago for nausea and chest tightness. Dr came out to tell me I had a positive pregnancy test, hcg, abnormal blood work, and i had a partial hysterectomy 3 yrs ago. Mentioned that I had something serious in my reproductive system. Dr notes said follow up for ovarian pathology and malignancy. Told me to get a fire under my butt and be seen in 2 days, well being a friday and not having a pcp yet, I spent all day doing just that. Got a gyn/onc willing to take me without referral. Been a week and still no appt. This waiting is killing me, not knowing what is going on. Current symptoms are feeling full quickly, bloating, constipation, some nausea, and a pressure in my lower pelvic region. Any thoughts on this anyone. Im scared and very anxious and tired of waiting for an appt. Much much love to all who have been diagnosed and receiving treatment for all cancers.
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@kristinfloyd You have such a supportive cancer care team especially with your Gyn/Onc. I just love how these doctors, nurses, and all staff consult with one another at Mayo and at other clinics where there is such close collaboration. Your plans to organize your craft room is so smart. When one's life feels out of control I think it helps to do something you do have control over. Like your craft room so that you can do your crafts in a space that feels comfortable for you. I have also read and heard that the patients who are optimistic do better. Now it's time to allow your cancer care team to do their work so that you can do yours.
We are here for you to lean on.