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How do I get my Rheumatologist to listen ?

Polymyalgia Rheumatica (PMR) | Last Active: Feb 16 8:43am | Replies (33)
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@pb50

I get that. And I try not to think whether I could justify another three week course of it for my persistent rib and diaphragm pain 🙂 I think that’s the definition of recreational (kidding).

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DadCue | @dadcue | Feb 7 8:58am

In a self-deprecating way, I told my rheumatologist that I was a "prednisone junkie."

I remember when I was on the verge of being blind in one eye while on 100 mg of prednisone. I told my ophthalmologist that I "didn't care" if I ended up being blind because I felt great!

There was another time when I asked my rheumatologist why prednisone wasn't a "controlled substance." She said that was why I shouldn't "self medicate" with prednisone and to "use prednisone as directed."

This all happened a long time ago before things deteriorated to the extent that I had to get off prednisone.

I still hear prednisone "calling me"once in a while especially when I can't explain why I still have pain. When someone asks me how much pain I have, I say about "3" on average for the "normal" pain. Then I say "0" for the "abnormal type of pain."

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