1. < Osteoporosis & Bone Health

disappointing results: would you continue or skip 2nd year of tymlos?

Posted by katwhisperer @katwhisperer, Feb 3 2:32pm

From what I've read, year 1 is usually one's best results on Tymlos, with 2nd year not as productive. I just got my DXA after 1 year on Tymlos and it's somewhat disappointing. a 5% gain in spine, no gains in hip or femur neck. Still firmly in osteoporosis land.

Tymlos is costing me a lot of money, as the Radius savings card runs out midway thru year. I'm wondering if a 2nd year is even worth it, if most gains are in year 1?

Seeing doc soon to discuss, but feeling discouraged. (I don't smoke or drink alcohol, maintain a good diet (no added sugar or salt, plenty of healthy veggies and proteins, very little red meat) get plenty of calcium, Vitamin D3, K2 and do weight training and weight bearing cardio daily. I don't think there's much more I can do.) 🙁

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

tetris | @tetris | Feb 5 9:49am
In reply to @06111945cc "Read “Good Bones”." + (show)
@06111945cc

Read “Good Bones”.

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I think you mean “Great Bones”, not Good Bones”, the book Keith McCormick published last year.

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mayblin | @mayblin | Feb 5 7:51pm
In reply to @rajmayo22 "All these 17 updates of today were very useful me. Since Sept 2022, I have been..." + (show)
@rajmayo22

All these 17 updates of today were very useful me.

Since Sept 2022, I have been on Tymlos. I did a DEXA after a year and radiology report description) said significant increase. (I wish I had insisted my endo doc that she views actual DEXA scan. If I were an endo practioner, I would have done that automatically.)

My endo doc has retired and I have a new endo doc who did review my med and bone history with me. She is willing to prescribe me tests of my choosing. After being on this support group, I see value in doing TBS and PINp and may be CTX. (I haven't checked for cost coverage of these tests. My medical insurance probably would cover these.)

She suggested that after 2 years of Tymlos, I would be a candidate for 70 mg/wk Fosamax or annual infusion type bone-building med. (For 10+ years, I was on Fosamax but discontinued as my Osteopenia was stable; may be a mistake on my part.)

I would welcome further discussion on my comment.

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You were on fosamax for more than 10 years, then stopped for a while, right? May I ask how long was your drug holiday between stopping of fosamax and the start of tymlos? Whats the %bmd increase after first year of tymlos?

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rajmayo22 | @rajmayo22 | Feb 6 9:16am
In reply to @mayblin "You were on fosamax for more than 10 years, then stopped for a while, right? May..." + (show)
@mayblin

You were on fosamax for more than 10 years, then stopped for a while, right? May I ask how long was your drug holiday between stopping of fosamax and the start of tymlos? Whats the %bmd increase after first year of tymlos?

Jump to this post

Drug holiday 15 years or so. I have to look at the report for percentage. Will get back. Thanks

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