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Unable to receive a dx, don't know where to turn next.

Chronic Pain | Last Active: Feb 18 5:27pm | Replies (29)

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@sue417

Hi
I am sorry your going thru this. When I read your post I thought lupus but you said.. testing was normal does your rheumatologist believe in fibromyalgia because a rheumatologist can test for that there are trigger points all over your body I went through something similar in my twenties I am now 65 I was diagnosed with fibromyalgia in my twenties by a rheumatologist I see a naturopathic physician who is amazing I also take medication called cyclobenzaprine which works wonders taking away pain I have multiple supplements that my naturopath has put me on which helps immensely did your cardiologist do a mimbi scan by chance which also they do a stress test drug induced . They inject a medication your on a special bike laying on your back, you're hooked up to a machine where they watch everything your heart does and once you're done the scan you go right into the Mimby machine and lay for 20 minutes. My cardiologist finally discovered my heart condition that way
I wish you luck that's very frustrating

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Replies to "Hi I am sorry your going thru this. When I read your post I thought lupus..."

I don’t tolerate narcotics so I am a huge fan of cyclobenzaprine - it was a lifesaver to help relax my muscles enough to sleep after my pulmonary lobectomy. I only used it for a brief while and discontinued my antidepressant during that period because it can result in seratonin syndrome if taken simultaneously. But it’s amazing. If you are old enough to remember flexoril, which was inexplicably discontinued, this is like that drug.

Wow, that is so wonderful how the doctors worked together. I also had chest pain and the stress test showed angina. I was put on beta blockers which had terrible side effects until I had an angiogram which showed my heart was fine. I have had FM since 1982 and that was the cause, muscles around the heart squeezing the heart when I exercised.