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I have Sjogrens and dryness is progressively getting worse.
Autoimmune Diseases | Last Active: Mar 1 4:41pm | Replies (46)Comment receiving replies
You can get a blood test to find out, although they are not 100% reliable. If you have the symptoms, you have Sjogrens; my mother had it and 2 sisters and myself have symptoms of it. My symptoms are Burning Tongue (look up the picture/chart of that on the Mayo Clinic chart of tongue pictures. Along with that we have Burning Vulva, Dry Eyes and Dry Mouth. Amitriptyline at night gets rid of the burning vulva part and I use Thera Tears (my eye dr.'s choice) for day and the nighttime ones before bed. OraCoat's Xylimelts keeps the dry mouth under control at night.
Replies to "You can get a blood test to find out, although they are not 100% reliable. If..."
Your reply is spot on! I thought I was the only one suffering from a Burning Tongue!! The dry mouth from Sjögren's is almost constant! Mornings are worst! 😝 Eyes open & stay that way till I put drops in. I use Oragel to add moisture, sugar-free mints and now on CellCept which helps create some Saliva. Anything you do is only a band-aid because you have to continue forever! I wish you much success on this MG journey! I'm riding along for more advice & suggestions!
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The dry eyes is the worst for me. And I've developed atopic dermatitis and am allergic to propylene glycol! (In the majority of eye drops. 🤣)
OptiFree PF works briefly for me. I've got to find heavier-duty drops for evening.