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Long COVID: Accepting my new normal

Post-COVID Recovery & COVID-19 | Last Active: Feb 26 10:31pm | Replies (52)

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@maxb1971

I agree *cries* it does help to know some people have found relief. I know my senses are under a magnifying glass as I experience them. It’s not that I am not believed, just completely misunderstood; and makes it almost moot to be in contact with my limited immediate family. They don’t get it. I live in the north east, so it’s difficult to get together for dinners and eat outside most of the time. Public events are just too much stimulation. I feel like a moron, sitting indoors with my own family wearing an N95 mask. I don’t even have a specialist willing to admit there’s something wrong; with all of the tests with the same subset of symptoms as so many others: ANA in my blood, abnormal oxygen levels, vitamin B and D deficiencies, chronic urinary track infections, so rare in men in the first place, on and on…how am I supposed to believe I am not at tremendous risk of further harm to myself, or others with Covid still in play? I try to be of help to others, but it’s usually at the sake of suffering in silence. My most treasured activity now is reading and responding to these posts. Thank you all for being here.

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Replies to "I agree *cries* it does help to know some people have found relief. I know my..."

Oh Max!
I do feel for you. Try not to isolate if you can. Remember should you contract Covid again, Paxlovid is now widely available. It was not when I first contracted Covid. I see some controversy attached to it, but I will take it in a New York minute if I get Covid again.
Anti virals are not a total unknown. I took antiviral for shingles, and the rash didn’t even break through! I’m a believer.
I’m hoping for more research in antiviral treatment for LC.

I believe the more we withdraw from life, the sicker we get. (You can remind me I said that)
Especially with sensory issues, participation is hard. But my advise is to know your limits, and take a break (from noise and people) when you must. But don’t cut everybody out completely.
We are here for you and know how you feel.