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Newly diagnosed with ovarian cancer (OC) ~ looking for support

Gynecologic Cancers | Last Active: Apr 3 9:34pm | Replies (27)
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@tbkomparda

Hello,
As a OC survivor first off want to tell you that the ovariancancersupportgroup.com is excellent great support many survivor stories invaluable resource.

What your feeling right now is perfectly normal please do not over read Dr Google statics are outdated there are several different subtypes of OC you are not poisoned or a leper as a private person myself I completely understand OC is a shock but there have been so many new drugs that have come to market you are blessed to be at Mayo sounds like you have a great Gyno/Onc I am a 26 month survivor diagnosed 2021 my only symptom was constipation thank GOD my internist didn’t chalk it up to post-menopause sent me for a pelvic ultrasound.

Not a club anyone wanted to join but you are now a member of the Teal Sisterhood I would be happy to answer any questions you may have or any of my other sisters on the above mentioned website.

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Replies to "Hello, As a OC survivor first off want to tell you that the ovariancancersupportgroup.com is excellent..."
paisleybandit | @kristinfloyd | Feb 6 5:18pm

@tbkomparda thank you for taking the time to reply to me. I am wondering about the support group you mentioned above. I am not finding it with that url. I would love to read some survivor stories for sure! I am doing my best to not google things. I am really doing my best to let my Provider guide me, and trusting in her. She used the words "Cureable" which I am not sure she should have, and in another call she said "I think we are on a great trajectory for you". So I am holding onto those things, but I also want to be realistic. I work with nurses (I am an IT professional) and one of them told me she worked with heart and lung transplant patients. She told me that the patients who remained positive with their outlook, had better outcomes. So I am also holding on to that.
Do let me know about the website. I found Cancercare.org support group, but I am thinking it might not be the correct one.
Do you mind telling me what stage you were when you were diagnosed? I love hearing you are 26 months out. Thank you again for your kindness.

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