Connect
← Return to twitching all over, weak, ALS
Discussion
Comment receiving replies
Hi Lori, thank you for the quick response. I totally messed up and saw that it was another hospital that denied me for 2nd opinion, not the Mayo Clinic. The link you gave me said it will be up to 3 buisiness days to hear from them. To answer your other questions, no, no other diagnosis. the other upcomming tests are another genetic test and more blood work. Iv'e had neurologicle issues for years and lived with it. I have built houses, surfed and raced cars my whole life which take streangth. Within 2-3 years I have lost all streangth to do any of that. I cant even do 1 push up. Something for sure is going on. I just want to get to the bottom of this and at least get the correct treatmant. Thanks again for your time.
Replies to "Hi Lori, thank you for the quick response. I totally messed up and saw that it..."
Connect
How frighting to be losing so much strength. I’m sure pulling for you and hope you get a appointment at Mayo. This is obviously impacting every facet of your life and finding an answer is the mission right now. I was so impressed with Mayo when I developed inflammation on my spinal cord a few years ago. So we’ll be optimistic that you get a consult. If not, keep trying. Please keep me in the loop, I’ll like to follow your story.
To make sure I get a notification when you write, if you could make sure my @loribmt shows in the comment that would be helpful.
Wishing you all the best, Lori.