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@johnbishop

Welcome @michelle1968, Sorry to hear your rheumatologist isn't listening to you or your symptoms. I was fortunate to get a referral from my primary care doctor to a rheumatologist who did listen and got me started on 20 mg prednisone which took away the pain within a few hours of the first dose. I think what makes it difficult is that PMR can be difficult to diagnose and there is no specific test for PMR and there are quite a few different conditions with symptoms that mimic PMR. Here's more information on the topic.

"There's no specific test for polymyalgia rheumatica, but it's likely that a series of blood tests will be done. Erythrocyte sedimentation rate (ESR) and C-reactive protein (CRP) are blood tests that can be used to check the levels of inflammation in your body."
--- Polymyalgia rheumatica - Diagnosis - NHS: https://www.nhs.uk/conditions/polymyalgia-rheumatica/diagnosis/.
--- Diseases that mimic polymyalgia rheumatica (PMR): https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica.

There is a great site that has some tips for planning your conversation with your doctor or in this case a rheumatologist - https://www.patientrevolution.org/tools. Have you thought about seeking help or a second opinion at a teaching hospital or a major health facility like Mayo Clinic?

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Replies to "Welcome @michelle1968, Sorry to hear your rheumatologist isn't listening to you or your symptoms. I was..."

Hi
I am on to my second rheumatologist now. Had all the bloods done which show very little.
My pain is related to tendons, ligaments and bursa not my bones.
I am seeing my Dr again soon so hopefully he will do a CT or similar to confirm diagnosis.