Max and all,
I do worry about dragging my family down. As with my friends, in my family I was the one planning birthday parties, and holiday events. I loved decorating and bringing the fun to our family gatherings. Now, I need help with most everything, and I don’t see that improving. My issues with distorted, diminished hearing and vision, make me very dizzy and clumsy. As I mentioned before, sensory issues are very debilitating, yet almost invisible to others. I know many of you understand. I feel as if I have been drunk, trying to act normal, for over two years.
So far, my husband and children have picked up the slack, and made sure we still do a version of what I did before I got sick.
I am grateful for that. But, I don’t want to be a chore to anybody.

I feel like I turned into an invalid overnight. I don’t want my husband to be my “caregiver”. I am older than you, but as a person who was really never sick, I expected many more active years. it’s really hard to accept how much I have changed.

I still try to have hope that something will work for me, and I will get back at least some of what I have lost. It helps me immensely to see a success story turn up here from time to time.