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← Return to Radiation or not after surgery for endometrial cancer?
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Radiation or not after surgery for endometrial cancer?
Gynecologic Cancers | Last Active: Sep 4 10:59am | Replies (94)Comment receiving replies
@marceyw First, welcome to our Support Group. You’ll get kindness and support here from those of us who have had gynecological cancer.
I was diagnosed with endometrial cancer (endometrioid adenocarcinoma, Stage 1a, FIGO 1) in 2019. I had recurrence in late 2021 and had pelvic external beam radiation and two sessions of brachytherapy. I can tell you that the brachytherapy was easier than I thought it would be and I was able to get up and walk out of the clinic with no after effects. My nurse practitioner who I see for my cancer surveillance appointments does a pelvic exam at each appointment. She tells me that there is some scarring at the site of the brachytherapy.
Since you are on the fence about where to go from here would you like to get another opinion? You could ask your primary care provider to refer you to another gyn-oncology practice. Or, if you are interested in getting another opinion at Mayo Clinic you could request an appointment at one of the 3 locations of Mayo Clinic using this link:
Request an appointment at Mayo Clinic:
http://mayocl.in/1mtmR63
Replies to "@marceyw First, welcome to our Support Group. You’ll get kindness and support here from those of..."
Hi Helen, what was the symptoms that gave you a clue that something was wrong with you in 2021, 2 yrs after your hysterectomy?
I had total hysterectomy in July 2022, all went well, no other cells found. I get ck ups every 6 months with my gyno-onco surgeon. So far, thank God I have not noticed anything that makes us believe something is wrong. I did ask get for a ct-scan for my next ck up visit thus coming Aug 2024 just for extra security. I didn't get any treatment or therapy after my surgery. My Onco said that the staging & the grade level and the fact that everything else was negative all pointed out to a good prognosis and it was best for me if they just watch it closely to avoid using unnecessary drugs and causing damage to my body etc etc etc.
But, I do fear the big C coming back to haunt me, mainly because nothing else was done to it to kill any random cells (if any) after surgery. I even dreamed (twice) of me spotting and lots of blood coming out, it is scary 😨 even in a dream. I trust my Surgeon Dr, I went to a good hospital in NYC, she is caring, knowledgeable, smart. Still cancer cells are so malicious that they can turn up anywhere and start causing pain and suffering when you least expect it. In your experience what can you tell me to educate me even more on this reality that changed my life forever.
Any tips or facts about our type of cancer that you can share will be greatly appreciated.
I too had grade 1.
Ps. So far, I try hard to stay calm, busy and focus, I feel great, travel, have fun, enjoy my family & friends, act and look young for my age (68) lol, I help those that need me, I go to church, etc.
I'm forever grateful to God, my doctor & my family for everything..... thanks, irma
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Thank you so much - this will help me to ask the right questions at my first appt with the radiologist. I went to my GP this week to get their input as well.
After your recurrence, are you doing well? My doctor said I had a gene that would qualify me for immunotherapy if I have a recurrence. I’m trying to research the best diet changes to help avoid a recurrence and praying for wisdom.