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Affinitor - Pneumonitis

Neuroendocrine Tumors (NETs) | Last Active: Feb 11 7:10am | Replies (33)

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@sophiarose

I am off Afinitor
My CT scan was perfect but I am still having a problem my heart races as soon as I do anything especially bending
My cardiologist wants me to see a pulmonary Dr I am trying to get a sooner than March 6th appt
My oncologist is now agreeing with my cardiologist and I shouldn’t take the Afinitor I should wait until March when I get my follow up scans
At that point I will be off Afinitor for 6 weeks
I took a good look at my journey that started in 2019 obviously my NETS are spreading at a fast pace so if I want to get ahead of it I need to step up my pace
I decided to make an appointment with Mayo in Jacksonville
I will be seeing Dr Starr on February 21st
I am hopeful!!!

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Thank you