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had my first appt

Gynecologic Cancers | Last Active: Feb 29 7:08am | Replies (47)

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@mommacandy

"Before you have your definitive debulking surgery, I recommend asking what they plan to remove."
@lathomasmd they have said that once they can get the tumors to shrink a bit they plan on removing basically everything related to the reproductive system, ovaries, fallopian tubes, uterus, cervix, omentum, etc as well as all lymph nodes that are affected in the abdomen/pelvic areas and the nodules they can remove from my liver without endangering my liver. They have said that if they did surgery right now (before chemo) they would not be able to remove all the ones on the liver without endangering it, i would end up with a colostomy and possibly not able to get all the tumors around the small intestines as well an it would endanger my bladder due to large size of one of them pushing on it. Thats why the chemo first. That was the consensus of the "tumor board" (basically all 9 of the gyn-oncology surgeons/doctors in the dept that meet to discuss all the patients biopsies, scans etc to get best care for each one) even though they knew i preferred surgery first... I trust them that they know what is best...they straight up said if the tumors weren't so numerous or large i would have definitely been recommended for surgery first as my overall health is great other than this.
thank you for sharing your insight...it helps a LOT

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Replies to ""Before you have your definitive debulking surgery, I recommend asking what they plan to remove." @lathomasmd..."

@mommacandy What you described at Tumor Board provides more confidence that all of the options for you were discussed with several physicians with different specialities weighing in. It looks like you have a good plan going forward and you have a good understanding of the recommendations for you.

I know how frightening all of this is as I am a cancer survivor (endometrial cancer). When you start chemotherapy you’ll be surrounded by a care team that will try to make you as comfortable as possible. From what you’ve written here it sounds like you are a good advocate for yourself.