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DiscussionDid anyone have a missed diagnosis of NSCLC?
Lung Cancer | Last Active: Apr 30 10:30am | Replies (82)Comment receiving replies
Replies to "I think if there was an incidental finding that required follow up tests recommended by a..."
Well I am definitely a reader now! Believe me I read every detail and words I don’t know (medical terms) I look up! Yes! We have to be our OWN Advocates!!!! Also need to make sure we ask doctors questions and not let them rush out of the room! We have to pay to see them which means we are paying for their time! Another reason I LOVE Mayo Clinic. They are paid salary, so it doesn't matter if they see 5 patients a day or 20, they get paid the same. They really stay and answer all your questions. (Unless there’s an emergency, of course). My husband and I also make a list. Hope you ALL have a Blessed day!
I agree. There are a few of us who have a lot of experience in the medical environment one way or another who would perk up and make sure to digest those radiology results. But that’s not Joe Q. Public.
@vic83 because we have had a lot of dialogue about our respective illnesses, I’m positive you didn’t intend to sound judgmental. And while
I’m all about being my own advocate, you and I and many others learned that necessity the hard way when we had the same delusion that we could count on others - and learned that too frequently things fall through the crack.
I have also been in hospital administration and I know there is an expectation that the patient in this situation should be unequivocally told to follow up on this result.
Stuff happens on spite of smart people and good intentions.
Whenever I need to have a test done outside of my own doctors (Mayo and my primary) I ask them to fax over results (actual scan also) so that the exams are in the same database location. It can be easier if you request at the time you are being seen there because otherwise when you call back to get it done, they may ask you to fill out permission forms etc., which is more work. Good idea to travel with the fax numbers of your doctors too.
In the past I have noticed that scans done at my doctor's will say "nothing to compare to", so good to have any previous ones in their database so they can see changes.
Big challenge to get all the medical information in one place. Sometimes they can look at another institution's records, but it depends. We can only hope for that day in the future where all our medical records will automatically be stored in one place.
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