← Return to scleroderma medications and quality of life questions

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@gila

Yes! Thank you for your reply. I wear a mask anytime in public and we live in a very rural area out in the mountains so our exposure to people is minimal. Our neighbors are mostly retired people like us, so we protect each other .
My dad had Polymyalgia Rheumatica and took prednisone for the last 10 years of his life. Every time they tried to taper him down below 5 mg, he was just miserable. He passed away from Lymphoma. I am on 2.5, but as a home care nurse I had a patient who was able to get by with 1mg. I’ve Always been a lightweight with medications, and that may actually be a bright spot with this disease.

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Replies to "Yes! Thank you for your reply. I wear a mask anytime in public and we live..."

Brilliant! You have all the insight you need! I misinterpreted your depth of knowledge - apologies.

I just got off a course of Prednisone for a rather bad RA flare. It was the first time I had it for 15 yrs when I took it for back pain and had a horrible experience. This time, it was awesome. I started on 20 mg and tapered off over four or five weeks. But for those first three weeks I was bullet proof, I had no pain anywhere, I was europhic. I had energy for days. All I could think was why I never heard of it in the 70’s 😁. Bit alas I can’t make a habit of it.

Good luck with your journey.