← Return to scleroderma medications and quality of life questions

Discussion
Comment receiving replies
@pb50

I will just remind you that prednisone increases your vulnerability to infection. It’s also a miracle drug but be cautious and deliberate about avoiding infections.

I get that you need prednisone. I suggest you speak with some of the people on the PMR board - polymyalgia rheumatica - because Prednisone is a mainstay drug for them. Some have been on it for a decade. Tapering down to a low dose is as much art as science. But if anyone can guide you on how to make a case with your doc for a longer course of prednisone, it’s those warriors.
@dada might be someone who can hook you up with the moderator or
other subject matter experts

Good luck!!

Jump to this post


Replies to "I will just remind you that prednisone increases your vulnerability to infection. It’s also a miracle..."

Yes! Thank you for your reply. I wear a mask anytime in public and we live in a very rural area out in the mountains so our exposure to people is minimal. Our neighbors are mostly retired people like us, so we protect each other .
My dad had Polymyalgia Rheumatica and took prednisone for the last 10 years of his life. Every time they tried to taper him down below 5 mg, he was just miserable. He passed away from Lymphoma. I am on 2.5, but as a home care nurse I had a patient who was able to get by with 1mg. I’ve Always been a lightweight with medications, and that may actually be a bright spot with this disease.