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New to neuropathy without pain
Neuropathy | Last Active: Feb 7 5:32pm | Replies (24)Comment receiving replies
I'm not Ray but I have the idiopathic neuropathy with large fiber damage showing on EMG and nerve conduction but no pain and so far my activity is not greatly affected even though i am 70.. I don't have high BP Large waist or blood sugar issues. My BP RUN 120/80 pretty much always. Weigh 120 and physically very active. I started getting foot neuropathy about 10 years ago that progressed slowly. The only thing that showed up in all the test was b6 at a level 5 times upper limit. This was caused by melatonin which had added b6 and Emergc whichbi took for about 3 years until thevtest was run. The neuropathy continued to progress even after getting my b6 to normal but seems to have stabilized to just my feet and ankles. B6 toxicity is known to cause neuropathy and I don't know if the damage is permanent or not. Hope you find answers
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@bb0753, my B6 levels remain high despite assurances from two neurologists' offices I've nothing to be concerned about. Two lab tests, two months apart, both showed high: 114.1 on 10/18 and 72.6 on 12/28. The top of the normal range is 65.2. The lowering by 41.5 in two months was attributed to being advised to halve my daily intake of EB-N5, the medicinal food containing, among other nutrients, B6––but the strain of B6 that (I'd told) does not lead to toxicity (pyridoxal phosphate), unlike the strain that does (pyridoxine hydrochloride). No one has yet stopped me from also taking a daily multivitamin and a B-Complex tab, both of which contain the "bad" strain of B6. I'd like to know how much of my present B6 overload is the "good" B6 and how much is the "bad"? Although I've asked, no one so far has been able to tell me. I've another meeting with one of my neurologists in two weeks and I'm going to ask again, a bit more insistent this time. –Ray (@ray666)