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@becsbuddy

@gila. Good morning. You and your husband have a lot to handle so we have got to find you some appropriate care. Are you now getting care at a comprehensive medical center or university med center? If not, that’s the 1st thing that you want to look into. I drive into Denver to UCH every 3 months for my care and it’s well worth it.
Or
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members This shows a system of Mayo-connected hospitals, several of which are in Arizona
Or
Call Mayo again and ask for recommendation of rheumatologists in your area
Or
Check with the Genetic and Rare Diseases for doctors in your area. https://rarediseases.info.nih.gov/

Will you try one of these suggestions on Monday and then let me know what you learn?

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Replies to "@gila. Good morning. You and your husband have a lot to handle so we have got..."

Thank you so much for your reply. I will read the info! I live in Southwest New Mexico where medical care is woefully in short supply. Can take 3-4 months just to see a general practitioner. Closest rheumatologist care is Las Cruses and they were not taking new patients. About 3 weeks ago my NP reapplied to Mayo for me and also to a rheumatologist she likes in Chandler. So far, no reply, so plan to call tomorrow, on Monday, to see status of referrals. Albuquerque is a possible option, it’s just logistics issues in that that husband is driving 5 and a half hours one way to get to Phoenix. He starts five weeks of radiation there at the end of February I haven’t been able to drive the last month due to feeling so bad (weak, foggy headed, dizzy, fatigue and wonky vision) that I would be unsafe. No family here. There is a little affordable private jet company that flies from here to Phoenix. I could fly them to Albuquerque also. I know I can’t continue as things have gone.
As you probably know, it is a long and frustrating battle to fight when you have barely enough energy to take a shower and get dressed. But I feel so much better this week than last month, so have clear enough head and energy to tackle this access to appropriate medical care again. Not called warriors for nothing:) I will let you know what I accomplish. Thank you again. Hope you are doing well!