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Discussionscleroderma medications and quality of life questions
Autoimmune Diseases | Last Active: Feb 5 3:35pm | Replies (7)Comment receiving replies
Replies to "@gila. Good morning. You and your husband have a lot to handle so we have got..."
Thank you so much for your reply. I will read the info! I live in Southwest New Mexico where medical care is woefully in short supply. Can take 3-4 months just to see a general practitioner. Closest rheumatologist care is Las Cruses and they were not taking new patients. About 3 weeks ago my NP reapplied to Mayo for me and also to a rheumatologist she likes in Chandler. So far, no reply, so plan to call tomorrow, on Monday, to see status of referrals. Albuquerque is a possible option, it’s just logistics issues in that that husband is driving 5 and a half hours one way to get to Phoenix. He starts five weeks of radiation there at the end of February I haven’t been able to drive the last month due to feeling so bad (weak, foggy headed, dizzy, fatigue and wonky vision) that I would be unsafe. No family here. There is a little affordable private jet company that flies from here to Phoenix. I could fly them to Albuquerque also. I know I can’t continue as things have gone.
As you probably know, it is a long and frustrating battle to fight when you have barely enough energy to take a shower and get dressed. But I feel so much better this week than last month, so have clear enough head and energy to tackle this access to appropriate medical care again. Not called warriors for nothing:) I will let you know what I accomplish. Thank you again. Hope you are doing well!