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Changing GI dr's at Mayo Clinic
Digestive Health | Last Active: Feb 5 9:58am | Replies (9)Comment receiving replies
UPDATE! I'm the one who originally posted about requesting a different doctor at the Mayo GI dept in Jacksonville because of how I was treated. I sent in a letter to the patient experience office and they responded with a general letter saying everything had been handled correctly and my case was dismissed. I wrote them a 2nd letter and actually requested a change in dr's (I never asked for it my first letter) and a director at Mayo called me and said they were dropping me as a patient and there was nothing more they could do for me (even though I was in the middle of testing and had 6 appointments scheduled). I begged, cried, asked why and was not given an answer. This whole experience at Mayo has been devastating with no answers and being treated so poorly, even though I went above and beyond as a patient to change my lifestyle, food, habits, to try to improve things (even though that was never discussed with me). Everyone who hears my story believes the dr felt challenged by me. Not at all trying to do any of that. I'm a researcher and this is MY life-that I'm struggling with. Just trying to get relief, help, and answers. So now I have to start all over again and try to find somewhere else to go.
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I am SO sorry this happened to you! I wouldn’t think that it would be a problem to see a different provider if you felt uncomfortable. It’s a long story, but I’ve also had an extremely negative experience with the clinic coordinating my care at Jacksonville.
I was treated very poorly by a PT who specialized in my condition, and I asked if I could have a “do over” with a different PT—I said I didn’t feel comfortable, and it wasn’t the right fit, and they arranged it for me. I went directly to the clinic where I am a patient though, and not Office of Patient Experience (OPX).
Anyway, I wish I had more to offer you, but all I can say is: I can relate. I also saw a GI doctor at Jacksonville, and he was straight-up rude and condescending to me, but I took it no further than the survey because I have referrals (with long waits) at home to see specialists and despite his condescension, some of the info may be actionable for me.
Similar to you, I brought a case to Patient Experience because someone accidentally cancelled my Neurology appointment without informing me and after months it wasn’t resolved. After their “investigation,” they concluded they were right to cancel it because on further review of my medical record they can’t verify I have the diagnosis I have because I provided a test report from my local medical center (a top 10 medical center for neurology) “lacked numerical values.” I was livid!
Why would I provide a test report lacking numerical values and if they had a faulty one, why didn’t they ask me?
But their decisions can’t be appealed. And same as you, all my appointments were canceled and I have to find somewhere new to go.
I’m still really hurt and it hurts all the more when I see Mayo commercials and hear of people practically waxing poetic about how amazing their experience at Mayo is, when that hasn’t been my experience at all. I’ve had NUMEROUS issues come up, but this was by far the worst offense, and no one there seems to care.
I’m still deeply sad, but it’s been a few weeks since The Letter, but I decided I’m better off going somewhere where I’m treated better (at least in the case of Neurology) and the providers want to work with me instead of looking for a reason not to.
It’s horrible that you have to start all over, and I see you mentioned you’re a researcher, and I dunno maybe they found us annoying because we’re willing to advocate for ourselves and ask questions. But I’m really hoping you are able to find a new place to start over and that it’ll be better for you. I considered Cleveland Clinic and I got an appointment at Johns Hopkins. Travel is a barrier, and my reluctance to start over kept me hanging on at Mayo, but if I’m honest the team at Jacksonville has not treated me well enough to merit me staying.
I just wanted you to know you’re not alone. It happened to me too. And I am truly wishing you all the best.