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Replies to "The drs originally ordered 12 rounds of chemo. They’ve never spoken of continuing. They seem to..."
@marciak9
Have you done a CTDNA lately? While you may not have evidence of a solid tumor, there could be cells in your bloodstream. Negatives on this test aren’t always accurate but they are finding amazing correlation with positive tests.
Even though my CA19-9 is in normal range, I will not stop some form of therapy. Most doctors have told me that until you have experienced no reoccurrence for 5 years you aren’t really in the clear. But…
I was staged IV. You may have a different situation. For me, I am investigating “maintenance” possibilities which include gemcitibine infusions (without abraxane) and also Xeloda (Cisplatin)
Without at least 2 or 3 months of CA19-9s consistently in normal range I won’t assume NED. Here again, markers track my condition very well. For some they don’t so it does become more of a surveillance game with scans. Congratulations on being where you are and don’t give up the fight!!!
Hoping Stave IV Survivor will jump in to comment.
I am not a medical professional, but I continue to read of folks who stopped chemo, were declared in remission and then there was indication, again. I don't understand it, but many have discussed the sometimes advisability of continuing chemo. So confusing.