← Return to Pancreatic Cancer Group: Introduce yourself and connect with others

Discussion
Comment receiving replies
@marciak9

The drs originally ordered 12 rounds of chemo. They’ve never spoken of continuing. They seem to think I’m in remission

Jump to this post


Replies to "The drs originally ordered 12 rounds of chemo. They’ve never spoken of continuing. They seem to..."

Hoping Stave IV Survivor will jump in to comment.

I am not a medical professional, but I continue to read of folks who stopped chemo, were declared in remission and then there was indication, again. I don't understand it, but many have discussed the sometimes advisability of continuing chemo. So confusing.

@marciak9
Have you done a CTDNA lately? While you may not have evidence of a solid tumor, there could be cells in your bloodstream. Negatives on this test aren’t always accurate but they are finding amazing correlation with positive tests.
Even though my CA19-9 is in normal range, I will not stop some form of therapy. Most doctors have told me that until you have experienced no reoccurrence for 5 years you aren’t really in the clear. But…
I was staged IV. You may have a different situation. For me, I am investigating “maintenance” possibilities which include gemcitibine infusions (without abraxane) and also Xeloda (Cisplatin)

Without at least 2 or 3 months of CA19-9s consistently in normal range I won’t assume NED. Here again, markers track my condition very well. For some they don’t so it does become more of a surveillance game with scans. Congratulations on being where you are and don’t give up the fight!!!