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Pancreatic Cancer Group: Introduce yourself and connect with others

Pancreatic Cancer | Last Active: 3 hours ago | Replies (1294)
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@marciak9

Hello
I have a tumor wrapped wrapped around arteries so no Whipple. I completed 12 rounds of chemo and 15 radiation treatments last July. I’m on a recheck every 2-3 months.

I’ve been vomiting and have constipation. They did see some new spots on my lungs at the last visit. This waiting is driving me crazy.

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Replies to "Hello I have a tumor wrapped wrapped around arteries so no Whipple. I completed 12 rounds..."
mayoconnectuser1 | @mayoconnectuser1 | Feb 4 9:23am

marcia,

Where are you being treated?

In many cases, stopping chemo based on a standards of care approach, might be the wrong thing to do ... could you provide more info?

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ncteacher | @ncteacher | Feb 4 9:51am

I'm also considered inoperable due to blood vessel involvement. I've also been told I don't qualify for radiation due to flat lesions in my abdomen that the radiation wouldn't hit. But I'm still doing chemo--round 19 will be Tuesday. FWIW, at my appointment last Friday, my NP said she has several patients who are into their second year of chemo. My oncologist and I agree that I'll keep going on chemo until I decide to stop and/or the meds are less effective. I'm on modified Folfiri (we dropped oxaliplatin after round 8) at 60 percent of typical dose. Why did you decide to stop chemo? Can you restart? It's not the funnest thing (is that a word? ha!), but if it works and holds the cancer at bay, it might be worth resuming it.

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