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Anyone have hair loss with lanreotide?
Neuroendocrine Tumors (NETs) | Last Active: Nov 4 10:44am | Replies (22)Comment receiving replies
Hello Nana120, I have been on Lanreotide for 14 months and have lost at least 70-80% of my once-thick, curly hair. I have been so depressed by this happening. My doctor also denies it’s the drug but blames it on “your age.”
I have never had hair loss in my life, and I’ve been old for a while (I’m 78). My dermatologist suggested Rogaine, but the directions say that causes initial loss before beginning to improve, and Im scared to cause more loss, fearing becoming completely bald.
I keep telling myself that given that the drug is prolonging my life, losing my hair is a small price to pay, but it is still a very disturbing situation.
Best wishes to us all.
Replies to "Hello Nana120, I have been on Lanreotide for 14 months and have lost at least 70-80%..."
Hi Roseflame
As a side note, my Oncologist stated that no chemicals (i.e. Rogaine) be applied. Your dermatologist should be in touch with the team. I think we all go into shock when changes such as hair loss occur (woman's vanity) as opposed to male pattern baldness (opportunity to look like the Rock). Being alive with the hope of more advanced treatment is exciting.
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Good morning! I too have similar experience with hairloss. I have been on Lanreotide for 11 months. Around 9 mo my hair started falling in handsfull. So I had a very short haircut. After 11 mo it had slowdown, but I still see hairs on my pillow and lots in the shower. And I had VERY thick hair before cancer. Also my nails are so brittle and have ridges. Still, I think this is a small price to pay for being alive.
I found a solid shampoo ( Kitch, from rice protein), which if it did not help my hair grow more, seems to make it look a bit fuller. I miss my hair a lot. But, I too have not received a compassion from my doctors...