I get frustrated with the lack of acknowledgement of side effects as well. I think they don’t warn you in advance for fear you’ll imagine them. You don’t imagine hair loss. I can report ten side effects to my oncologist and he’ll say, so you’re doing great. See you next time. Sometimes I’m shocked by the portal notes and feel very unheard. I could tell him my left leg just fell off and the notes would say patient denies left leg falling off. Or I could say it happened 20 min after taking the med and he’d say it’s unrelated. I look at my lab scores that were all normal before cancer meds and now there is red all over the report stating abnormal yet my oncologist sends me a note that my labs look great. Why can’t he just say abnormal scores are as expected but nothing that would require us to stop treatment. I also think they just get so used to hearing the same complaints from every patient that it starts to sound normal to them. Finally, I worry that providers are under pressure to report good outcomes for better quality scores and possibly financial incentives and that’s why my side effects are not well documented.