Mass found Suspected Stage 4 Esophageal Cancer squamous cell

Posted by tbkomparda @tbkomparda, Jan 17 5:21pm

Hello,
My Husband had a colonoscopy/endoscopy yesterday a mass the suspects esophageal cancer while we await biopsy results we have been referred to a medical oncologist who specializes in this type tomorrow his symptoms over the last 5 months have been anemia, weight loss and most recently a lot of belching he can swallow fine our hospital is NW Chicago who has a proton center as an Ovarian Cancer Survivor myself I a bit familiar with chemo but not with this type as I’m very scared would appreciate any info on treatment protocol and survivor stories thank you!

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Feb 3 2:43pm

In reply to @tbkomparda "Hello Don If I may ask were you put on a feeding tube when initially diagnosed..." + (show)

Hi Tammy, I'm tagging @dsh33782 to make sure he sees your question about whether he was on a feeding tube or not as well as his experience with radiation.

How did the endoscopy go? Have you had the consults with radiology and oncology? What are next steps for you guys?

Colleen Young, Connect Director | @colleenyoung | Feb 3 2:45pm

In reply to @mlyles "Don, thank you for your reply. I am scheduled for an appointment today to go over..." + (show)

@mlyles, I wonder if Mayo Clinic in Rochester, MN might be an option for you. If you'd like to seek a second opinion from Mayo esophageal cancer experts, here's where to request a consult http://mayocl.in/1mtmR63

What did you learn from the biopsy? How are you doing?

Don Higgins, Volunteer Mentor | @dsh33782 | Feb 3 4:57pm

In reply to @tbkomparda "Hello Don If I may ask were you put on a feeding tube when initially diagnosed..." + (show)

Hi Tammy
I got the feeding tube along with port very soon after esophageal caner diagnosis as I could not swallow food. I was on ISOSOURCE canisters for nurshment for several months during radiation and chemo which successfully removed the cancer tumor. The radiation and chemo made me very tired all the time and I also was caughing a lot. I am
feeling much better now. Let me know if I can answer other questions.
Don

rschreib | @rschreib | Feb 3 5:29pm

I have recently been diagnosed with gastroesophageal cancer. My symptoms came out of nowhere. Last Sunday night I began vomiting blood after dinner. My husband and I went to the ER at which point I was intubated. The doctors did an endoscopic ultrasound, found a mass in the area between my esophagus and stomach, which they biopsied. When I was in the hospital, I also had a CT scan and PET scan. By Thursday I received the pathology report indicating that I have gastroesophageal cancer. I met with oncologists who told me that my liver will need to be biopsied, as an area lit up on the PET scan. Once we have the results, we will have a better sense as to whether this cancer is localized or has metastasized, which will enable my oncologist to determine staging and a treatment plan. We will find out more when we meet with her on Feb. 14. (A quick side note – I am not the usual candidate for this kind of cancer, but since both my father and aunt had pancreatic cancer, it's likely related in some way to my genetic makeup. However, nothing came up with my previous genetic tests.) I will be asking questions to members of this support group as I find out more about my treatment plan. Many thanks in advance.

tbkomparda | @tbkomparda | Feb 6 8:06pm

In reply to @dsh33782 "Hi Tammy I got the feeding tube along with port very soon after esophageal caner diagnosis..." + (show)

Hi Don
Thank you for your post regarding the feeding tube. What did your chemo/radiation schedule consist of how many days of each? In addition to the fatigue and coughing were you nauseous? We’re you able to be ambulatory on some days?

Don Higgins, Volunteer Mentor | @dsh33782 | Feb 6 9:18pm

In reply to @tbkomparda "Hi Don Thank you for your post regarding the feeding tube. What did your chemo/radiation schedule..." + (show)

Tammy
I had chemo for 3 weeks before starting both chemo and radiation for 28 days spread over 5 days per week. I received mediation which prevented nausea. I was able to walk the whole time but was very tired all the time. Let me know if I can answer more questions.
Don

gooddaughter | @gooddaughter | Feb 7 1:00pm

In reply to @rschreib "I have recently been diagnosed with gastroesophageal cancer. My symptoms came out of nowhere. Last Sunday..." + (show)

So sorry. This group is great for info. Let us know staging. There’s a live support group that meets 2/wk also.

tbkomparda | @tbkomparda | Feb 8 8:26am

Thanks a bunch Gary has reached out to me don't feel so alone.

rschreib | @rschreib | Feb 8 9:39pm

In reply to @gooddaughter "So sorry. This group is great for info. Let us know staging. There’s a live support..." + (show)

Thank you. When do you meet?

Colleen Young, Connect Director | @colleenyoung | Feb 19 10:20am

@tbkomparda, how are you and your husband doing? Any update?

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