I get frustrated with the lack of acknowledgement of side effects as well. I think they don’t warn you in advance for fear you’ll imagine them. You don’t imagine hair loss. I can report ten side effects to my oncologist and he’ll say, so you’re doing great. See you next time. Sometimes I’m shocked by the portal notes and feel very unheard. I could tell him my left leg just fell off and the notes would say patient denies left leg falling off. Or I could say it happened 20 min after taking the med and he’d say it’s unrelated. I look at my lab scores that were all normal before cancer meds and now there is red all over the report stating abnormal yet my oncologist sends me a note that my labs look great. Why can’t he just say abnormal scores are as expected but nothing that would require us to stop treatment. I also think they just get so used to hearing the same complaints from every patient that it starts to sound normal to them. Finally, I worry that providers are under pressure to report good outcomes for better quality scores and possibly financial incentives and that’s why my side effects are not well documented.

Hi Nana120, Oncologists are vague because everyone's reactions are different depending on their DNA, other interferences i.e. drugs, treatments.
Hats, wigs, creative hairstyles, and mostly lower stress! Good luck and it may get better.