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Anyone else with autoimmune flare ups?

Digestive Health | Last Active: Feb 4 5:25pm | Replies (11)

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@parisl

I had several doctors who tested me year after year and always said I was fine. When I finally tested having both sjogrens & scleroderma I took it to my Primary physician and she: "yes, I knew that but it wasn't that bad"! W H A T? I felt like that was telling a diabetic "oh, yes you have diabetes BUT your sugar level is good today so you're fine!"
If the test shows a specific number, my understanding is, it shows which autoimmune weather flared up or not...we deserve to know either way so we know what to expect when it does flare up.
The great thing now is, mine was flared up by foods that I can easily eliminate, just like a diabetic!

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Replies to "I had several doctors who tested me year after year and always said I was fine...."

The ANA does not turn negative, ever, I have been told, so maybe it was your food testing that turned negative-?

I have very high scleroderma antibodies but not sure I have it as yet. Blood tests do not suffice for a diagnosis, no matter how serious the blood tests look. And the SCL-70 has false positives.

Many autoimmune patients have internal organ damage. I have a friend who has had more than one kidney transplant. I have lupus but do indeed feel it is "not that bad"!

I gave up dairy, gluten, nuts, salmon, chocolate and avocado years ago. My ANA remains very positive.