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DCIS do I really need an AI?

Breast Cancer | Last Active: May 4 3:53pm | Replies (67)

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@rene1636

Yes, They have an Oncotype DCIS genetic test which will give you the percentage of reoccurrence with. Radiation & AI’s & without doing either. I had one done after DCIS that was contained in the duct. I have a 9% chance without doing anything more so I chose not to do radiation or meds. If you do radiation & have an invasive reoccurrence in the same breast then your only option is a mastectomy since they can only radiate the same breast 1 time. I was diagnosed at 62 & also have Osteoporosis so I also declined the AI’s since that can cause more bone issues. At my 6 month diagnostic & 1 year follow up mammograms so far, I’m good. I’m planning on being diligent in my screenings so if anything does show up I hope it can be caught early on.

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Replies to "Yes, They have an Oncotype DCIS genetic test which will give you the percentage of reoccurrence..."

Hi
I asked my oncologist about this post. As far as if you have radiation Can you only have it once on a breast . His response was that is not necessarily true. It depends what the location is and how much radiation you have. And if a recurrence is in another area you definitely can have radiation. Just thought I would share that.

@rene1636 I had DCIS in my left breast 20 years ago. I chose not to have radiation, but took Tamoxifen for 3 yrs. Hair started falling out so quit it. Years later I heard, like you, of you radiate the breast once, you cannot do again. Dr. didn’t mention, but that long ago, maybe they didn’t know. I had a mastectomy (unilateral) on right breast, so like you, I get checked every 6 months, alternating between mammograms & MRI on left remaining breast. I feel my
screening is very proactive and of something shows up , it will be caught early. We all need to make our own decisions on what feels right for us , and Be Proactive. Stay strong to all of you going through this.