Oh I’m so happy that you wrote into us. So thankful. The doctors have drug you through the mire and I am mad about it for you and I am sad sad sad for you. Years and years of neglect and down right abuse is what I heard in what you described in your 35 year experience and no good meds to manage your condition. And believe me we now and have had for years great medications for autoimmune diseases!! Most of us…surely I have had a bad experience with doctors that try to make you think that it’s “all in your head!” On my first airline flight I was 19 and sat next to a pilot. I was scared to death and oh so nauseated and he kept saying “it’s all in your head” and I kept saying I’m going to throw up. We touched down a couple of times before landing in Little Rock and as soon as we landed I threw up all over the beautiful lady to my left myself and guess who?? The pilot. Oh and I had on the most gorgeous blue dress and that was my first time to wear it. Now had the pilot been in reality he would have shown me the bags for throwing up..I still would have thrown up but we would have all been clean. So much for denying reality. Huh? I am on my fourth rheumatologist and he’s wonderful he listens and I have been in one form or another of remission or
Another for 5 years. But I was treated terribly as were you before I found this caring doctor. I also see someone for help with pain. Quality of life means everything after all the years in pain and suffering. Starting today I will commit to praying for you. YOU DESERVE THE BEST OF EVERYTHING. YOU NEED THE BEST MEDICAL CARE OUR COUNTRY OFFERS. I had decided to go to Mayo Clinic when I found this doctor. God bless and many prayers to you. Diane.