I am 80 year old woman and I was first diagnosed with PMR in 2015 . I am fortunate enough to have a good rheumatologist [difficult to find as we live in a rural region of NSW Australia]. I was free of PMR after about 2 years having been on decreasing dose of Prednisone. I was blissfully free for about 5 years. Then in 2022, after a very stressful time[moving house and our much loved dog dying] I developed classic symptoms of LCA or GCA [depends which country you live in].I was admitted to hospital in order to have 100mg infusion of prednisone. I was then eased down eventually to 5mg BUT then suddenly 2 months ago I had bad double vision and was immediately put back to 50mg. My blood tests were in normal range so I have become a mystery . Now both eyes are showing reduced blood flow [I had a fluorcein angiogram and a MRI ] ordered by my ophthalmologist . DRs now want me to have scan [either ultrasound or CT] of my neck in case the carotid artery is partially blocked . Through all of this I am now taking 10mg of prednisone and a weekly injection of Actemra. No apparent side effects. although one has to wonder . I do get fatigued quite quickly. Obviously I would love to have some certainty in my life and I do not want to become blind. I know this post is not particularly helpful but it does highlight how individual these auto immune afflictions are.