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@dloos

My symptoms are somewhat different than most. My hearing is distorted, ears feel clogged with pressure, and vision is blurry. Also, get congested sinuses (no mucus). I’m very, very dry..eyes, nose, mouth. Digestion wrecked with extreme constipation.
I’ve lost about thirty pounds. My symptoms keep me dizzy and unable to do normal activities.
I’ve had all kinds of tests (tested three times for Sjogrens.

Integrative medicine tries all sorts of treatments. I started with acupuncture and chiropractic. I had already tried those on my own, and never got any relief with different practitioners. Next was vitamin infusions. No real difference with that treatment either.
Now I have just started ozone therapy, and another vitamin infusion targeting nerve repair. Too early to say what the result might be.
My tests indicate Epstein Barr, but I don’t remember ever having it. Some new tests have not been read yet.
???
I keep looking for answers.

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Replies to "My symptoms are somewhat different than most. My hearing is distorted, ears feel clogged with pressure,..."

Sorry to hear you’re going through all of this!

Have you tried any type of antibiotics by chance? Just curious because the constipation GI could be related to Covid infecting gut bacteria and EBV is a gut virus that can hang out in the GI area….

I know there’s rifaximin for SIBO and IBS, but maybe there’s a cocktail of an antibiotic and antiviral that could target both at the same time. There’s a website that discusses Dr. Lerner and CFS, with successful use of antivirals for 6 months for EBV, pretty high doses, with good success rates. Check out drmyhill.co.uk, it’s interesting to explore what they’ve been doing and finding.

I see an infectious disease doctor specializing in CFS,HIV, and long covid soon so hopefully they might have some answers 🙏🏻