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Abdominal Aortic Aneurysm

Aortic Aneurysms | Last Active: Feb 24 11:19am | Replies (79)

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@JustinMcClanahan

I'd like to invite @heather1976 to this conversation on abdominal aortic aneurysms. Welcome to Mayo Clinic Connect @heather1976. I've invited you to this conversation to meet @luckybear and @expat69 who recently posted in this discussion as well and may be able to share some of their journey with you.

@heather1976, you mentioned you are wondering on what you should be looking out for since you were recently diagnosed. Did you ever hear back about getting a scan from the vascular specialist? Have you tried reaching out again to confirm they don't want to proceed with that?

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Replies to "I'd like to invite @heather1976 to this conversation on abdominal aortic aneurysms. Welcome to Mayo Clinic..."

Thanks for joining me up here Justin. The specialist has said I will get another scan in May, I don’t have a date yet. I continue to see and feel a heart beat just below my belly button, with a dull pain that comes and goes throughout the day. The pain is nothing I would worry about if I hadn’t had this diagnosis. I feel I should trust the specialist would have got me in sooner for a scan if they thought it necessary, but also I worry things and people easily get overlooked and symptoms get brushed aside. I live in the U.K. and the NHS is severely strained, due to lack of funding from government, and my experience is you have to really push to get any care at all. With something as serious as saccular abdominal and iliac aneurysms and the catastrophic outcomes if they rupture, it seems I shouldn’t take any chances. So I guess I’m wondering what other people with aneurysms would do about the pulsating stomach and dull off and on pain I am experiencing. I constantly worry about it and am now trying not to exert myself at all. Always feeling like I should not travel anywhere that isn’t close to a hospital in case of an emergency. May seems a very long time away to be living like this. I’ve been told by a specialist I saw after my initial diagnosis that I would most likely need surgery at some point and it would need to be open surgery, not EVAR. The private specialist I paid to see gave me much more info then the NHS appointment specialist which was helpful but also worrying. The thought of all of this is terrifying.