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Long COVID: Accepting my new normal

Post-COVID Recovery & COVID-19 | Last Active: Feb 26 10:31pm | Replies (52)

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@rmce72a

I am right there with all of you. My symptoms are the same and not improving in nearly 3 1/2 years. I have been to several specialists and continue to see more in hopes that SOMEONE SOMEWHERE can help me (us). My happy, productive life has vanished. No one has a precise answer, much less solutions, although some doctors have offered meds or therapies that "might" help. I am just taking life day by day and hoping for the best. Healing wisshes to you all.

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Replies to "I am right there with all of you. My symptoms are the same and not improving..."

It’s the best we can do for right now. Our affliction addresses us one moment at a time, and that is all we can do in response or preparation. One thing I know for certain is that the Myalgic encephalomyelitis most of us suffer from is cyclical. Meaning, we are not actually exhausted from the acts or physical exertion. We just did. It’s actually a depletion of serotonin, which works on a 24 to 72 hour replenishment cycle. So we all must be mindful of pacing ourselves. Mental stimulation a part as well. So, even though we may feel fine after walking 4 miles, but then crash two days later, after walking to the refrigerator and back, we don’t really know what, and how much of something was too much, and for that matter what it was in the first place. I am not a doctor, but I am a human and suffering as well. I must believe that we are not just sitting around and waiting to die, therefore, the only thing that gives me remote relief is knowing what my triggers are, regulating, and pacing myself, and refusing to give up. I must admit, it’s unbelievable the number of people going through this, yet the cheeks of the masses have been turned to the other side for this. Sadly, it does not bode in our favor when we go to doctors, and no more than they do about what’s going on. That typically leads to a medical gaslight. I believe the start of this thread was “accepting my new normal”, in short; no! We must never allow this to be normalized, and keeping the conversation going is a great way to support and document everything we go through on a minute to minute basis. I wish everyone a blessed and calming weekend.