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Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
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@gouy

I was diagnosed with Merkel Cell Carcinoma August of 2020
All I heard was very rare or never heard of it.
I had two surgeries, one to remove the MCC and the other to remove the lymph nodes in my upper thigh. Had 5 weeks of radiation.
Just had my 4 PET scan, came back clear.

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Replies to "I was diagnosed with Merkel Cell Carcinoma August of 2020 All I heard was very rare..."
rogermcintire | @rogermcintire | Feb 1 4:55pm

I recently completed 25 radiation treatments for Merkel that first appeared on my left cheek under the left eye. Surgery removed the cancer area and one lymph node with Merkel cells. I'm receiving OPDIVO immunotherapy infusions every two weeks and after eight treatments I have had no adverse side effects.
I will have a CT scan in March.
It is good news to hear of your clear PET scan and gives me positive thoughts as to my prognosis! Thanks for sharing!

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