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Is anyone on Capecitabine for pancreatic cancer?

Pancreatic Cancer | Last Active: Mar 26 3:16pm | Replies (19)
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@mnewland99

Hello Waltsocal,
I have an unknown variant on atm gene. My ca prior to removal of my stage 2 pancreatic cancer was 91, prior to 5Fu chemo it was 8, by end of 12 cycles if 5FU (June 15,2023) it was 6. In Nov 2023 it got up to 223 and in January 2024 it was 3840. I’m now receiving the gem/abraxane/cis chemo and after 3 treatments I’m down to 2120. In my case, and my current UCLA oncologist agrees, ca19-9 is a good indicator of the pancreatic cancer progression. I wish you luck in your journey.

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Replies to "Hello Waltsocal, I have an unknown variant on atm gene. My ca prior to removal of..."
marienewland | @mnewland99 | Feb 1 3:02pm

Forgot to mention I’m Stage 4 now, so I’m my case with my genetics the ca19-9 is a good indicator, but others says with the BRCA gene, it may not be. It’s in my liver now and abdomen and hepatic artery. Have to pair that with mri and Ct. I’ve had 3 PET scans and I think they were a waste of resources.

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waltsocal | @waltsocal | Feb 1 4:49pm

Thank you for the feedback. I wish you luck with your chemo treatments.

How did they decide on your 3 dose chemo?

Did you feel the PET scans didn't show anything different than the CT scans ?

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