@diana865 this is great news! Shrinkage means that you are on a regimen that is working! For some that is not the case and they have to keep changing regimens.

@waltsocal
I am now a 24 month thriver of this disease. Diagnosed stage IV.
I’ve seen se real for second opinions at different points and asked many questions. I have surmised that PETs are not seen as necessary when tumor markers, scans, and biopsies confirm cancer. Systemic chemo is their answer to cool the fires-wherever they may be raging. CT machines that incorporate PET scans exist and I have done this twice. It sometimes highlights areas that are not cancer-most often thyroid .

MRIs of the local areas like pancreas or liver are the most helpful to surgeons for truly understanding how/when/and possibility to get you to a
surgical next step.

I’m nothing special but I definitely have not quick work or volunteering where I can be useful. We can control a few things.. our diet, our rest, who we surround ourselves with but most important is your attitude. Choose to think of this as a chronic disease that can be managed. If your doctors don’t see it this way, perhaps look for a group that does. Often it’s led by our attitudes, not them!💜💜