Connect
← Return to Treatment options for Dysautonomia
Discussion
Treatment options for Dysautonomia
Autoimmune Diseases | Last Active: Oct 3, 2022 | Replies (47)Comment receiving replies
My daughter has been diagnosed with Dysautonomia that is not pots at least not your typical pots. She has low blood pressure and faints with her heart stopping. Her tilt table test showed her pause was 30 seconds. Her fainting episodes only happen when triggered by anxiety. Ex. Getting a root canal at dentist. Giving a speech. Witnessing someone’s injury. Her episodes occur 1-3 times a yr. I believe Pots patients faint often & at any given time. She doesn’t fit this criteria.
Our dr recommends a pace maker & is referring us to Mayo Clinic. Mayo has us on a waiting list with an Automic Specialist. Mayo won’t give us an estimate of how long the wait list is:(
We wanted to wait on the pacemaker until we got a chance to talk to Drs at Mayo. Our own Dr said there is no guarantee the pacemaker will make any difference so it makes us skeptical. Wondering if others benefited from their pacemakers?
Replies to "My daughter has been diagnosed with Dysautonomia that is not pots at least not your typical..."
Connect
I have been diagnosed with dysautonomia and my husband has been diagnosed with vasovagal syndrome. Anytime he gets dehydrated or he overworks himself or becomes too stressed he goes into a full fainting with convulsions. It looks like an epileptic seizure but it is not it is called fainting with convulsions and I've witnessed 17 of them and it's horrifying to witness. But the heart doctor said many people have this vasovagal reaction that causes them to faint anytime they're stressed or full of anxiety or worry or if they get even slightly dehydrated or they overwork themselves etc it can cause the vasovagal nerve to react and cause them to faint. I have even worse symptoms with my dysautonomia so between the both of us we're just in really bad shape at the age of 61 we're both looking out for each other at this point and I am on and over one year waiting list to go to the Mayo clinic which I find is absolutely horrifying to be on a one-year wait list.