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Treatment options for Dysautonomia

Autoimmune Diseases | Last Active: Oct 3, 2022 | Replies (47)

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@widman

Thanks to Colleen for inviting me in on this group. My son, daughter, and I all suffer from dysautonomia, and all of our symptoms are quite different. I was surprised to discover we all had the same underlying disorder. Clearly genetic in our case, but I have done lots and lots of research, and it seems that dysautonomia manifests differently in each person affected. We have seen numerous doctors and have done endless testing. We have finally come up with some pieces to the puzzle (though we are not sure yet how they all fit together).

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Replies to "Thanks to Colleen for inviting me in on this group. My son, daughter, and I all..."

Welcome. Sorry to hear that you and your family have been hit so hard by this but at least you have all been formally diagnosed, that's half the battle.
There are some good public resources out there for self-education, http://www.dinet.org is one that comes to mind.
Your symptoms vary but is there any commonality in the diagnosis, as in what genetic entity it is?