Hazel, I was diagnosed with Cold Agglutinin Disease a year and a half ago. I’ve been checking on this website for a long time but have never seen anyone with CAD.
My first treatment was a round of Rituximab. That really was not helpful in bringing up my hemoglobin. I then had a round of Bendemustine and Rituximab combined. I found out in November that this treatment did not help my red blood cell destruction. Tomorrow I will have my third Enjaymo infusion. I feel like I’m beginning to feel better and am able to do more.
I’m sorry to hear you’re having joint pain. I do have lots of side effects, but I don’t have joint pain.