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New to neuropathy without pain
Neuropathy | Last Active: Feb 7 5:32pm | Replies (24)Comment receiving replies
Hi, @josef3. I think we all go through a period of frustration when we're first diagnosed. I did. The ENG you'll soon be getting may not eliminate all of your frustration. I've had two myself, the second one only last Friday. So far, my EMGs have only eliminated possible causes but not identified one. I was also invited to do a DNA test (a possible hereditary cause?), but I'll not get the results for a few weeks. My neuropathy (so far) is idiopathic large fiber axonal polyneuropathy. I'll keep this post short. I know you'll soon be hearing from dozens of Connect subscribers. Connect is a great place. I'm glad you've joined! –Ray (@ray666)
Replies to "Hi, @josef3. I think we all go through a period of frustration when we're first diagnosed...."
Hi Ray…I stumbled across a study looking at people with idiopathic axonal poly neuropathy. In a nut shell, the study was looking at the relationship between metabolic syndrome and neuropathy. Metabolic syndrome in layman’s terms is having high blood pressure, high blood sugar , high cholesterol and large waist size ( typically at least three of these). The study showed a higher incidence of neuropathy with people who have metabolic syndrome…and particularly those with high blood pressure…the theory being the high bp causes micro vascular damage…which damages the axons. I’m curious if you have metabolic syndrome…particularly high blood pressure. ( I fall into that category). It may be a hint as to what’s caused the neuropathy.
Steve
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Ray,
Thanks for responding do you have pain? I don't which is weird and were you able to get any help? Thank again for responding I feel so alone