← Return to Chronic Pain members - Welcome, please introduce yourself

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@rwinney

Hello @faithoverfear, welcome. I'm sorry, you've been battling a long while for sure. Leaning on strengthening your faith is a wonderful tool to help with pain management. I understand your frustration - having pain makes it difficult to move so we move less, however, not moving also makes it difficult to move as deconditioning or atrophy sets in. It's a pickle!

One thing that has helped in my chronic pain journey was learning that *hurt does not equal harm*.
*This phrase is used when there is a chronic condition and indicative that there is no long an acute issue*. We have to move, even when we hurt. Motion is lotion, move it or lose it...you get the picture. This took me a long while to figure out and it's hard work to make happen, but through moderation and scheduling, it certainly can happen and help.

A process called central sensitization is when there are permanent changes in the spinal cord sending false signals of pain to the brain. This is where hurt does not equal harm comes in. Are you familiar with Central Sensitization Syndrome (CSS)?

Very Well Health:
- https://www.verywellhealth.com/central-sensitivity-syndromes-716160

Mayo Clinic - Dr. Christopher Sletten discusses CSS:
- https://www.youtube.com/watch?v=vJNhdnSK3WQ

So sorry for your latest diagnosis. I've been learning more about congestive heart failure as 2 people dear to my heart have both been diagnosed with it. Has your doctor provided a plan for you beyond lifestyle changes? Will there be surgery, perhaps? If you're comfortable sharing more, I am interested in learning.

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Replies to "Hello @faithoverfear, welcome. I'm sorry, you've been battling a long while for sure. Leaning on strengthening..."

Yes I have heard of CSS, I have been through the Pain Rehab Clinic at Mayo in 2010 as well as Fibro Classes at Mayo. My current Physical Therapist has been reteaching/educating me about it as well. But reading the article you attached I realize I need to be more assertive on getting psychological help too. Also in my diagnosis are IBS, TMJ, Chronic Fatigue. As for new health issues, medications and weight loss are the immediate priority. Increasing activity has really flared my pain. I am doing my best trying to find balance or at least a way to get through.