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Occular Migraine? Aura without headache?

Brain & Nervous System | Last Active: Feb 3 7:12am | Replies (14)
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@turley78

My eye doctor also advised me that my ocular migraines are nothing to be concerned about. That is great but now I am having 8-10 a day and they are very distracting. Luckily, like you, I don't get the headaches with them either. Sometimes the blurry vision does cause me to be nauseous or I sometimes feel a little tired after having them. I would love to know the source or how to stop them. Do you have updates or helpful hints since you last posted, that you can share?

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Replies to "My eye doctor also advised me that my ocular migraines are nothing to be concerned about...."
Zebra | @californiazebra | Feb 2 3:31pm

Hi @turley78
Having visual disturbances 8-10 times a day would definitely be distracting. Wow, sorry to hear that. Wish I had a solution for you.

MESSAGE TO ALL: Especially to those having temporary blind spots in just one eye. Be sure to get checked out and don't just assume visual disturbances are ocular migraines. Two years ago, I wasn't sure if I had an ocular migraine or TIA. Now after two more incidents, providers have determined I'm having TIAs (aka mini-strokes) connected to afib.

Good 5 min video on Amaurosis Fugax by neuro-opthalmologist
https://www.youtube.com/watch?v=T3kU-UckIRQ

I've now had 3 TIAs in less than 2 years, all three times they happened at the end of about 30 hours in afib (atrial fibrillation - irregular and rapid heartbeat that can cause blood clots). Almost two years ago, vision in both eyes became totally pixelated and then a weird fall backwards 4 hours later. Last week, I suddenly lost a third of my vision in just one eye for 2 minutes, blurred out/cloudy, not pixelated this time, but couldn't see through it. 4 months ago, my left arm suddenly became heavy, numb, had strong pins and needles, hand became bright red and felt like it was swelling (all at once) then suddenly every symptom was gone in less than 30 seconds. I thought I was having a heart attack or stroke while just talking to a neighbor. Every time, the issue(s) both started and stopped in an instant and were of brief duration.

When my neurologist concluded it was an ocular migraine 2 years ago, I didn't make the afib connection and didn't bring that up. I also have a rare neuropathy with lots of neuro issues so that just seemed like one more. At the time, I went to see her because I was more worried that it might be my advanced breast cancer spreading to my brain, but luckily a brain MRI confirmed it wasn't.

Blessings to all hoping you all find solutions to your visual disturbances.

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