update:
i had my PET Scan done at Mayo yesterday and they called back pretty quick with the results. They found “fdg uptakes” in my head, my neck, and my left tonsil.
The results say:
“Relatively symmetric FDG uptake in the lymphoid tissues of the head and neck is likely physiological but given the relative intense FDG uptake recommend correlation with direct examination to rule out occult malignancy. For reference, FDG uptake along the left palatine tonsil is max SUV of 10.7, best image 86.”

“CHEST: Amorphous FDG uptake along the anterior mediastinum is likely benign hyperplasticity thymus with a maximum SUV of 3.3, best image 149. No pathologically enlarged or hyper metabolic supraclavicular, mediastinal, hilar, or axillary lymph nodes.”

“Postoperative changes are seen along left axilla. No nodular hypermetabolic focus in either breast to suggest malignancy”.

“No suspicious pulmonary nodules.”

ABDOMEN/PELVIS:
“Heterogeneous FDG uptake of the liver and spleen without focal hypermetabolic lesions. No nodular hypermetabolic focus along the gallbladder, pancreas, adrenal glands, or kidneys to suggest malignancy.”

“No pathologically enlarged hypermetabolic mesenteric or retroperitoneal lymph nodes. No focal hypermetabolic bowel thickening or evidence of obstruction.”

MUSCULOSKELETAL:
“Heterogeneous FDG uptake in the skeleton. No suspicious lytic or blastic osseous lesions. No hypermetabolic cutaneous lesions appreciated”.

Now. I don’t know what any of this means and i’m very confused. But. I’m being referred or transferred to an ENT specialist there at Mayo because of what they found from the PET Scan. I should be hearing from Scheduling sometime today to make that appointment. I’ll have to go in person, no more telehealth appointments, and i was told that they’re probably gonna want to put me through more tests to figure out what’s going on exactly.
They told me that they did not find a recurrence of the Melanoma, so that’s good and i’m happy to hear that. But. i don’t understand why this scan found these “uptakes” and the person i spoke with yesterday said they’re most concerned about my head, neck, and left tonsil. I’m kind of wondering if i should be seeing an oncologist just because of my history even if they didn’t find Melanoma specifically, but i’m not a doctor, so i’m hoping they know for sure that an ENT specialist can help with whatever’s going on.
I’m the one who pushed for me to have a PET Scan. These past few months of me being so sick, i had asked two different doctors (not affiliated with Mayo) for them to put me through a PET scan but they were both concerned that i wouldn’t be able to afford it so they refused to schedule me for one. I took matters into my own hands by asking my most recent/new doctor at Mayo for them to put me through one, and now they’ve found these “uptakes”. If it weren’t for me speaking up and pushing for this, i probably would’ve never had this scan. So because of that, because of the fact that i had to do the job of the doctors i’ve had these past few months..i want to trust Mayo completely because i have zero issues with them..but i’ve lost so much trust and faith in doctors these past few months (even if they’re not affiliated with Mayo). I’m just really hoping that i can figure out what exactly is going on and why i’ve been so sick, and preferably as soon as possible. I’m still trying my best to not fully worry because i don’t have any clear answers yet as to what’s going on, but if i’m being totally honest, i’m kind of scared. For me, PET Scans have always been the “cancer scan” because i had to do them back when i had the Melanoma when i was 17. I know that it detects other things and i shouldn’t jump to conclusions, but, it’s a little easier said than done with the kind of medical history that i have.
i’ll try my best to keep posting updates but i can’t promise anything because if at any point i find out that this is something serious, i’m gonna have a lot more in my life to focus on if you know what i mean.
And again, thank you to anyone who leaves a comment on here and i’m sorry if i don’t respond or if it takes me a while to respond..there’s just so much that i’m trying to process and work through right now. Lots of love to those of you who show genuine concern and care, it means more to me than you’ll ever know, even if we don’t know each other.
I’m not sure if it’s allowed for me to mention this on here, but i tend to post a lot of health updates on TikTok if anyone’s on that platform, and my username is notdefinedbyyou . If you comment on any of my posts on tiktok saying you’re from Mayo Connect, i’ll definitely follow you back.