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@camrynmarie
I’ve never heard of that happening. I refused the VNS so I have no first-hand knowledge of it but I wanted to ask you if it's controlling your seizures. Are you taking medication also?
I hope your doctor can somehow secure the VNS.
Take care,
Jake

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Replies to "@camrynmarie I’ve never heard of that happening. I refused the VNS so I have no first-hand..."

It’s not controlling them completely and I’m still taking medication but I’ve reduced my medication by well over half. I’ve considered just getting it removed but family members talk me out of it every time because they think it’s made at least somewhat of a difference in my seizures even though they haven’t gone away. I hope so too though or I hope I can at least get some answers here or elsewhere.