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Looking for others with Pituitary Adenoma

Brain Tumor | Last Active: May 31, 2022 | Replies (79)

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@cheryl1

Yes. I had 2 pituitary surgeries at mayo in Jacksonville 12/19 and 4/7/20. Both unsuccessful. I was diagnosed with Cushing disease and ended up having both adrenal glands removed 5/7/20. I am still having problems and losing hope. 3/13/21 cheryl

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Replies to "Yes. I had 2 pituitary surgeries at mayo in Jacksonville 12/19 and 4/7/20. Both unsuccessful. I..."

I am sorry to hear you are feeling so bad.My husband was diagnosed with pituitary adenoma, and diagnosed with Cushing disease, he had surgery and had pituitary adenoma removed and where his was the doctor said possibility might not get it all but so far nothing everything is fine. He does go every 6 to a year to Endocrinologist for follow up. He was told that if it return he couldn't have a 2nd surgery and maybe he will be able to do mega knife. But that is why go and see the doctor I posted for another opinion.

University/Jackson Memorial can help. Please even if just to get 2nd opinion

Here both doctor information, keep in touch.

Neurologist: Ronald Bienveniste 305 243-6946
U Sylvester 3rd Floor
rbenveniste@med.miami.edu

Endocrinologist: Dr Atil Kargi
UM Endocrinologist
305 243-3636
Same place has neurologist